RareSearch logo

Community Engagement and Outreach for Marfan Syndrome

Examples

This project focuses on enhancing community engagement and outreach for Marfan Syndrome through collaborative efforts.

Description

Marfan Syndrome often goes unnoticed. This project aims to raise awareness and improve community engagement. The Marfan Foundation supports patients with Marfan Syndrome. Dr. James Wilson, a renowned cardiologist, leads this project. 

Objectives

Enhance community engagement for Marfan Syndrome
  • Awareness campaigns
  • Educational workshops
  • Community events

Project scope

  • Campaign development
  • Workshop planning
  • Event organization
  • Long-term program implementation

Method

  • Research Methods:Community surveys and event feedback
  • Patient Engagement:Patient advisory panels
  • Data Collection & Analysis:Feedback analysis and campaign effectiveness review

Metrics

Increased community awareness and engagement
  • Event attendance
  • Campaign reach

Similar projects

https://loremflickr.com/640/480/nature?lock=3859322995998720

Community Engagement and Outreach for Marfan Syndrome

This project focuses on enhancing community engagement and outreach for Marfan Syndrome through collaborative efforts.
https://loremflickr.com/640/480/nature?lock=2043296255836160

Potassium Ion Channels

Join this forum if you’re a patient group or academic researching potassium ion channels.
https://loremflickr.com/640/480/nature?lock=6222937518505984

Holistic Support Programs for Neurofibromatosis

A project to develop holistic support programs for Neurofibromatosis patients, addressing both medical and psychosocial needs.